Thanks to Bryce, other babies can be saved

By: Cindy Kirchhofer State Representative

A Hoosier family’s struggle will help save the lives of others. Bryce Clausen was a one-year-old who was diagnosed with Krabbe, a rare genetic disease, and recently passed away. His difficult journey and shortened life highlight the need to screen newborns for the disease.

There is no cure for Krabbe, but those diagnosed and treated early have better chances of living longer, healthier lives. Once symptoms appear, it is too late for treatment. Bryce was not screened at birth, and his diagnosis came only after symptoms appeared.

In addition to Krabbe, the new law I supported also adds Pompe disease and Hurler syndrome to Indiana’s newborn screening panel. This was the first bill signed into law by Gov. Eric Holcomb this session.

Our hearts ache for Bryce and his family who bravely shared their story to help save others. The Clausen’s are true heroes who turned their struggle into meaningful change.

In addition to pushing for this legislation, the Clausen’s are raising money to sponsor a theme room in Bryce’s name at the Peyton Manning Children’s Hospital. To learn more about Bryce’s battle and support their efforts, click here.

Bryce’s Story
Written by Joel Clausen, Bryce’s father

Bryce Harlan Clausen was born January 25, 2018 at 10:02am at 37 weeks. Bryce was born via C-section due to a few complications with mom and baby. After birth, Bryce spent 15 days in the NICU while dealing with some lung and feeding issues. 15 of the longest days of his parents life, but 15 days that showed what an absolute warrior Bryce was. So many folks, family/friends/others, reached out to help support the family while Bryce was confined to the NICU. So many people reached out that wanted to help in any way they could which led Bryce’s parents to start a GoFundMe page with the sole purpose of giving back to every single doctor or nurse that had helped care for Bryce while in the hospital. Thousands of dollars raised later and on advise from a nurse family friend, who told the family that nurse break room luxuries are paid for by the nurses themselves, the Clausen’s bought a brand new fridge and microwave for the NICU break room. They also made individual care packages for more than 50 nurses and doctors. Finally, with the remaining funds, a book cart was purchased for the NICU floor, complete with a premie book written by a family friend that has Bryce’s name on the inside of each of the books. Bryce’s legacy was started, seemingly at birth.

For the first few months of Bryce’s life, he was just like any other baby. He was laughing and playing and was as happy as any baby could be. Things started to change with Bryce at about 5 months of life. He became very upset for hours and hours a day. He stopped rolling over and smiling all together. His body became stiff, often times he was so stiff his parents couldn’t even remove his onesies. He refused to take a bottle. He was losing weight. Numerous trips to his pediatrician to try different things to help him all led to nothing more than more questions than answers. Bryce underwent an MRI and on November 1, 2018, Bryce was diagnosed with Krabbe disease. Krabbe disease is a neurological disease that attacks the myelin, the protective covering around the nerve cells. It is an extremely rare disease. There is no cure and unfortunately it is terminal. 60% of babies make it to one year of life, 16% make it to their 2nd birthday. He will most likely go blind and deaf. He has already started to lose his vision. He will never smile again. He will never crawl or walk or talk.

At this point, his parents are trying to make Bryce as comfortable as possible. They are choosing to make his life as great as possible for however long Bryce has. Part of their quality of life is sharing experiences with Bryce. The Clausen’s refuse to call this a “Bucket List”, instead call it a “Greatest Hits List”, in a nod to experiences his parents and family think a boy should experience. Things like, his first NFL game, playing in the snow, finger painting, a road trip, and most importantly…..making a difference in others lives. In January 2019, Bryce was admitted to Peyton Manning Children Hospital for bacterical pneumonia. He and his father, Joel, stayed in room 4003. While there, Joel noticed that the room was bare and no decorations on the walls. Joel inquired as to why the room was blank and was told that the room was not sponsored. Many of the other rooms have fun themes like a superhero room (Bryce had previsouly stayed in that room), a car room, numerous Colt themed rooms, etc. Joel couldn’t let that thought go, that children admitted to the hospital, sick or hurt, going through some of the worst parts of their young lives and having to be in a boring room wouldn’t make them feel any better. Something had to be done. Here is Bryce’s chance to leave his legacy. Here is Bryces chance to make a difference in someone elses life. Here is Bryces chance to cross off another item on his “Greatest Hits List”.

As much as the Clausen’s would love to do this all by themselves, the $50,000 room sponsor fee is just not in their budget. While they focus on keeping Bryce comfortable and keep him on a busy schedule of medicine and doctor appointments (including trips to Krabbe specialists in Pittsburgh) they can’t stop thinking about helping others. They know what these families are going through that are staying in these rooms. They know the simple joy that a fun themed room can do for a child. In a complex world, it sometimes is the simple things. In a life that is being cut short by a terrible, nasty, rare disease….. leaving a legacy that can live on long after Bryce is the greatest hit on the “Greatest Hits List”

 Click here to support the Clausen family’s themed room project at Peyton Manning Children’s Hospital at St. Vincent!

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Indianapolis Colts: The Exhibit

Indianapolis Colts: The Exhibit

Indiana Historical Society – Details HERE

450 West Ohio St. Indianapolis, IN 46202

Tel: (317) 232-1882

Mar 10, 2018 – Aug 10, 2019 10:00 a.m. to 5:00 p.m.

Since 1984, the Indianapolis Colts have captured the hearts and loyalties of central Indiana residents. Memorable players, inspiring coaches, heart-stopping games and two glorious stadiums have cemented the team’s place in the annals of Indianapolis history. Visit Indianapolis Colts: The Exhibit to celebrate the team while exploring football’s role in American culture through digital activities, player interviews, original artifacts, photographs and video of the Colts in action.

Discover how American football grew out of the rugby fields of Ivy League academies into the modern game loved by millions through sweeping changes brought about by the Industrial Revolution. Witness the Hoosier Dome and Lucas Oil Stadium’s rise into the Indianapolis skyline to redefine the city’s image as a championship town. Snap a picture with your favorite virtual Colts player and learn about their views on football, leadership and the NFL. Cast your vote for the best Colts player or the most memorable game moment and see how your choice compares to other fans. See the game through the eyes of officials by making a call on a real NFL play and find out if your decision matches the actual call. Relive the glory of the 2006 season and how the players and the coaches made it all possible. Scramble on the field as the Colts mascot Blue to juke and dodge oncoming tackles using your whole body. Explore the rise of the NFL and how it became the multibillion-dollar juggernaut it is today.

But most of all, connect with the story of the Colts and how they became a team that embodies the values, drive and heart of the city they call home.

Presented by: The Indianapolis Colts

Supported by: PLOW

Spring Weather Safety

Spring has sprung! As wild spring weather approaches, be sure you know your risks and get prepared. Learn more from the National Weather Service: http://bit.ly/2JLhLU3

 

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Golf 4 Kids – May 15, 2019

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Brickyard Crossing Golf Course

Every year, hundreds of children from across the state get the experience of a lifetime at The Salvation Army’s 706-acre Hidden Falls Camp in southern Indiana. For many of these kids, a week at summer camp is normally outside of their family’s budget. Thanks to the support of generous donors, The Salvation Army is able to create amazing adventures for children as young as six, where they can try new challenges, make lifelong friends, and explore nature in a safe, Christian environment.

This May, you have a unique opportunity to be a part of the magic that is summer camp. The Golf 4 Kids Outing on May 15th raises money to send kids to camp and to create fun, enriching experiences that they’ll never forget. Whether you are a golfer ready to hit the greens, or part of a company that would like to sponsor the outing, we welcome everyone to reach out to us and learn more about this exciting event.

Buy your tickets online here.

If you would like to pay via check or become a sponsor, please fill out our brochure and mail it in. Download the brochure here.

In addition to great golf on the beautiful Brickyard Crossing Golf course, golfers enjoy a box lunch, a silent auction, and much more. We encourage you to spread the word about Golf 4Kids with your friends, co-workers, and congregation.

Interested golfers can reach out to Deena Ford, Special Events Manager, at  (317) 222-7873 or Deena_Ford@usc.salvationarmy.org.

Interested sponsors can reach out to Andy Amick, Director of Corporate Relations, at (317) 914-8046 or Andy_Amick@usc.salvationarmy.org.

Thank you to our Sponsors!

Title Sponsor:

13 WTHR

 

Gold Sponsors:

Turner
Deem

Original Article

 

Check to see if you qualify for a FREE Indiana tax filing!

What is Indiana freefile?

INfreefile logo

INfreefile was developed in 2003 by the Internal Revenue Service (IRS) and tax preparation software vendors. INfreefile allows customers with lower adjusted gross incomes (AGI) to file their federal and state taxes for free using simple question and answer type software.

Information Video

Over 2 million Hoosier taxpayers will qualify for Indiana freefile! Are you one?

  • Faster refunds: A paper-filed return can take up to 12 weeks versus up to 4 weeks for an electronically filed return.
  • Confirmation: You’ll receive confirmation that your return was received and accepted.
  • 24/7 access: You can access INfreefile at any time, day or night.
  • Easy to use: All INfreefile options are user-friendly and include step-by-step instructions.
  • Fewer errors: Electronically filed returns have a 2 percent error rate, compared to a 20 percent error rate for paper-filed returns.
  • More efficient: You can prepare and file your federal and state tax returns at the same time.
  • Convenient: INfreefile provides the added convenience of direct deposit for refunds and direct debit for payment of taxes owed.

See if you qualify to file income tax returns for free.

  1. Review the offers from the vendors listed below.
  2. If you think you qualify for one or more of them based on your 2018 income, select a vendor of your choice by clicking on its logo.
  3. Once you select your vendor, you will be redirected to the vendor’s website to begin your return.
  4. It’s that simple!

Notes:

  • To ensure you can file both your federal and state return for free, access these free file products from this page.
  • Please note that you will need to create a new account each year with the vendor to ensure a no-cost filing.
  • Read our Indiana freefile FAQ here.

For more information visit here: INFREEFILE

Happy 100th Birthday to The American Legion!!!! 03/15/2019

100 years of serving veterans, military members and their families.

The American Legion’s centennial birthday is about the nearly 2 million members who carry out the duties of the nation’s largest veterans service organization.

Why does the Legion celebrate its birthday on March 15?

On that date in 1919, the first American Legion caucus, held by members of the American Expeditionary Force, convened in Paris. Much as the birthday of the United States is celebrated on July 4 – for the date in 1776 when patriots declared the independence of the British colonies and birthed the spirit of America – March 15 is the date when The American Legion came to life.

Throughout the organization’s history, local posts across the country have celebrated with festivities that have included the entire community. For the 20th birthday in 1939, Battle Mountain Post 71 in Hot Springs, S.D., brought out a 40-pound birthday cake – two pounds for every year of The American Legion’s history. For the 38th birthday in 1957, Post 214 in Upper Darby, Pa., hosted an entire week’s worth of events as part of American Legion Birthday Week, so proclaimed by the township’s Board of Commissioners. Parties, dances and a two-act play were held at Post 214’s clubhouse.

Some aspects of Legion celebrations have remained mostly the same over the years: for the 91st birthday in 2010, Post 252 in Greenwood, Ind., held its annual dinner, with speakers and entertainment by the Greater Greenwood Community Band. The post-sponsored Boy Scout Troop 621 presents the colors every year, but had a bigger role in 2010. Commemorating the 100th anniversary of Scouting, Post 252 made that year’s party a joint affair with the troop. The national organization can get involved in commemorations, too: for this year’s 93rd birthday, the new American Legion Amateur Radio Club is operating as a special event station, and a committee has already been formed to celebrate the Legion’s 100th birthday in 2019.

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Here are some things that you may not know about The American Legion.

  • The American Legion was founded in March 1919 in Paris, France, by U.S. World War I military personnel
    stationed there who were dedicated to four pillars of service and advocacy: veterans, military personnel, youth
    and patriotic values.
  • The American Legion today consists of 55 “departments” in each of the 50 states as well as the District of
    Columbia, France, Mexico, the Philippines and Puerto Rico. There are approximately 13,000 local posts
    worldwide.
  • Current national membership is about 2 million. Combined with the American Legion Auxiliary and Sons of
    The American Legion, membership in what is known as the American Legion Family exceeds 3 million.
  • American Legion membership is open to military personnel and veterans who have served their nation on
    active duty during wartime. Eligibility has been open to all who have served on active duty since Aug. 2, 1990,
    the beginning of continuous U.S. armed conflict in the Middle East and other locations around the planet.
  • The Legion has been instrumental in the creation of a number of major institutions of American society,
    including formation of the Department of Veterans Affairs, creation of U.S. Flag Code, passage of the
    GI Bill and more.
  • American Legion posts annually:
    » Donate more than 3.7 million hours of volunteer service in their communities
    » Provide assistance on more than 181,000 VA benefits claims and cases
    » Donate more than 80,000 pints of blood to collection centers nationwide, which makes the Legion the
    nation’s single largest blood donor
    » Awards more than 8,000 medals to Junior ROTC students
    » Sponsors more than 2,500 Scouting units serving more than 64,000 young people
    » Awards more than $4 million in college scholarships
  • Among the prominent Americans serving on the national 100th Anniversary Honorary Committee are:
    » Chairman Theodore Roosevelt IV, grandson of American Legion co-founder Theodore Roosevelt Jr
    » Tom Brokaw, former American Legion Baseball player and American Legion Boys State participant
    » Mitch Daniels, Purdue University President, former American Legion Boys State and Boys Nation
    participant and former two-term governor of Indiana
    » Jamie Corkish, former American Legion Junior Shooting Sports champion and 2012 U.S. Olympic gold
    medal winner
    » Diane Carlson-Evans, Vietnam War combat nurse
    » Gen. Patrick Brady, Medal of Honor recipient
    » Val Nicholas, NBC News Vice President
    » Susan Eisenhower, international policy adviser and granddaughter of President Dwight Eisenhower.

Want to know more about The American Legion or would like to join? Visit: The American Legion

Did you know as the child of a Veteran, you may be eligible for The Sons of The American Legion or The American Legion Auxiliary? Learn more here: Sons of The American Legion and American Legion Auxiliary

International Women’s Day March 8 – #BalanceforBetter

What is International Women’s Day?

International Women’s Day (March 8) is a global day celebrating the social, economic, cultural and political achievements of women. The day also marks a call to action for accelerating gender parity.

No one government, NGO, charity, corporation, academic institution, women’s network or media hub is solely responsible for International Women’s Day. Many organizations declare an annual IWD theme that supports their specific agenda or cause, and some of these are adopted more widely with relevance than others. International Women’s Day is a collective day of global celebration and a call for gender parity.

International Women’s Day is all about unity, celebration, reflection, advocacy and action – whatever that looks like globally at a local level. But one thing is for sure, International Women’s Day has been occurring for well over a century – and continue’s to grow from strength to strength. Learn about the values that guide IWD’s ethos.

Want to know more about today’s event, visit here: International Women’s Day.

International Women’s Day (March 8) is a global day celebrating the social, economic, cultural and political achievements of women. The day also marks a call to action for accelerating gender parity.

International Women’s Day (IWD) has occurred for well over a century, with the first​ ​IWD gathering in 1911 supported by over a million people in Austria, Denmark, Germany and Switzerland. Prior to this the​ Socialist Party of America, United Kingdom’s Suffragists and Suffragettes, and further groups campaigned for women’s equality.

Today, IWD belongs to all groups collectively everywhere.

IWD is not country, group or organization specific.​

Make IWD your day – everyday.

Students Make A Difference: Ben Nicoson – Center Grove High School

If you live on the Southside, you probably know about the tragic death of Rashawn Haskins on Dec. 1. Rashawn was on his way home from a game and was killed in a car accident at U.S. 31 and Main St. in Greenwood. Every parent’s worst nightmare. Rashawn was voted an all-state senior wide receiver and had 25 schools from Division II to NAIA to Division III interested in him as a freshman at their schools. A bright young man with a bright future.

Ben Nicoson did not personally know Rashawn Haskins. Nicoson wanted to do something so he created a Go Fund Me “Hoops for Haskins”. He enlisted the help of the Indiana High School Athletic Association, Center Grove principal Jeffry Henderson and student athletes from across the state of Indiana.

On Saturday 2/16/2019 Ben Nicoson presented a check to the family of Rashawn Haskins for $22,208.92. The funds were generated by the Go Fund Me account in which every basketball player in the state was asked to donate $1.00. That is a lot of students making a difference in the lives of 1 family in Indiana.

Great job students!!

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Southport High School student Rashawn Haskins. (Photo: Doug McSchooler/for IndyStar)
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Center Grove High School student Ben Nicoson (Photo: Doug McSchooler/for IndyStar, Doug McSchooler/for IndyStar)

Center Grove High School Article

Indy Star Article

USA Today High School Sports

IMPD to Host Community Listening Sessions As Part of Body Worn Camera Study

Beginning next week, the Indianapolis Metropolitan Police Department (IMPD) will host a series of community listening sessions aimed at gathering feedback on a draft policy for body worn cameras. The listening sessions were first announced by Mayor Joe Hogsett and Chief Bryan Roach on February 4, when they laid out the community-and stakeholder-driven feasibility study that will seek input from both residents and rank-and-file officers in addition to a technology pilot period.

The feasibility study of body worn cameras will include an extensive community engagement process that kicks off with the community listening sessions and also includes a secure, web-based survey sponsored, created, and maintained by the IUPUI School of Public and Environmental Affairs (SPEA). Residents can access the survey here, which will be used to garner the community’s opinions on body-worn cameras, the technology used during the study period, and other related factors. At a later date a second round of community listening sessions will be announced to allow IUPUI SPEA to share survey results directly with community members.

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The study will also include a pilot of body worn camera technology. Several vendor technologies will be tested by the officers who serve in the busies shift on the largest districts – all beat officers and supervisors on North, East, and Southeast District middle shift. This is a second, larger pilot of body worn camera technology in Indianapolis, but the first time the community will take part in the assessment.

Residents can access the survey here: Survey

A community listening session will be held in each IMPD district during the first half of March. The schedule can be found below:

Southeast District March 4 at 6:00 pm Southeast Community Services 901 Shelby

Downtown District March 5 at 5:30 pm City Way YMCA 430 S. Alabama

Northwest District March 7 at 6:00 pm International Market Coalition 3685 Commercial

Southwest District March 11 at 6:00 pm Friendship Missionary Baptist Church 1301 Goodlet

North District March 12 at 7:00 pm Zion Hope Baptist Church 5950 E 46th

East District March 14 at 6:00 pm Eastern Star Baptist Church, J229 – 2nd Floor of Jewel Conference Center, use north entrance 5750 E 30th

Original Article

How secure is Nest Secure?

 Avast Security News Team, 20 February 2019 Original Article

Nest Secure users got a surprise when Google revealed a secret microphone on the device.
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Earlier this month, Google pushed an update for Nest Secure that enabled it to function as a Google Assistant smart speaker. The announcement surprised users not just because of the new feature, but because the news came with the revelation that a microphone has existed on the hardware all along.

Until then, Nest Secure never had a feature that allowed voice commands, so users who placed the security system in their home had no cause to think a microphone was on the hardware. Moreover, the microphone is not listed in any of the product descriptions or instructions. But this month users learned that their Nest Guard device — the keypad component of the Nest Secure system — has a microphone that this newest update would enable.

In a climate of rampant information collection, a secret microphone naturally makes a person suspicious. A representative for Google comments, “The on-device microphone was never intended to be a secret and should have been listed in the tech specs…That was an error on our part.” The company claims the microphone had been installed for future features, such as this.

Avast expert Luis Corrons believes that Nest Secure owners may be able to rest easy. “It is important to note,” he says, “that the microphone is disabled by default in all Nest devices. To enable it, the users have to do it themselves via the Nest app. This means that at no moment was it possible for the device to be listening.”

Avast is a global leader in cybersecurity, protecting hundreds of millions of users around the world. Protect all of your devices with award-winning free antivirus. Safeguard your privacy and encrypt your online connection with SecureLine VPN.

Learn more about products that protect your digital life at avast.com. And get all the latest news on today’s cyberthreats and how to beat them at blog.avast.com.

Download Free Antivirus Protection from Avast

Security is a great deterrent, but if something bad does happen make sure your home policy is correctly set up to help you and your family in your time of need. Call Scott Lynch at (317) 886 – 0081 for your free review. Stop by our website: Scott Lynch Agency