A Hoosier family’s struggle will help save the lives of others. Bryce Clausen was a one-year-old who was diagnosed with Krabbe, a rare genetic disease, and recently passed away. His difficult journey and shortened life highlight the need to screen newborns for the disease.
There is no cure for Krabbe, but those diagnosed and treated early have better chances of living longer, healthier lives. Once symptoms appear, it is too late for treatment. Bryce was not screened at birth, and his diagnosis came only after symptoms appeared.
In addition to Krabbe, the new law I supported also adds Pompe disease and Hurler syndrome to Indiana’s newborn screening panel. This was the first bill signed into law by Gov. Eric Holcomb this session.
Our hearts ache for Bryce and his family who bravely shared their story to help save others. The Clausen’s are true heroes who turned their struggle into meaningful change.
In addition to pushing for this legislation, the Clausen’s are raising money to sponsor a theme room in Bryce’s name at the Peyton Manning Children’s Hospital. To learn more about Bryce’s battle and support their efforts, click here.
Every year, hundreds of children from across the state get the experience of a lifetime at The Salvation Army’s 706-acre Hidden Falls Camp in southern Indiana. For many of these kids, a week at summer camp is normally outside of their family’s budget. Thanks to the support of generous donors, The Salvation Army is able to create amazing adventures for children as young as six, where they can try new challenges, make lifelong friends, and explore nature in a safe, Christian environment.
This May, you have a unique opportunity to be a part of the magic that is summer camp. The Golf 4 Kids Outing on May 15th raises money to send kids to camp and to create fun, enriching experiences that they’ll never forget. Whether you are a golfer ready to hit the greens, or part of a company that would like to sponsor the outing, we welcome everyone to reach out to us and learn more about this exciting event.
If you would like to pay via check or become a sponsor, please fill out our brochure and mail it in. Download the brochure here.
In addition to great golf on the beautiful Brickyard Crossing Golf course, golfers enjoy a box lunch, a silent auction, and much more. We encourage you to spread the word about Golf 4Kids with your friends, co-workers, and congregation.
If you live on the Southside, you probably know about the tragic death of Rashawn Haskins on Dec. 1. Rashawn was on his way home from a game and was killed in a car accident at U.S. 31 and Main St. in Greenwood. Every parent’s worst nightmare. Rashawn was voted an all-state senior wide receiver and had 25 schools from Division II to NAIA to Division III interested in him as a freshman at their schools. A bright young man with a bright future.
Ben Nicoson did not personally know Rashawn Haskins. Nicoson wanted to do something so he created a Go Fund Me “Hoops for Haskins”. He enlisted the help of the Indiana High School Athletic Association, Center Grove principal Jeffry Henderson and student athletes from across the state of Indiana.
On Saturday 2/16/2019 Ben Nicoson presented a check to the family of Rashawn Haskins for $22,208.92. The funds were generated by the Go Fund Me account in which every basketball player in the state was asked to donate $1.00. That is a lot of students making a difference in the lives of 1 family in Indiana.